julie brusio

  1. Breaking Point

    I hate it.

    It rocks me to the core and makes my hair stand on end.

    Over and over, with no end in sight, she keeps on repeating the same phrase. No matter what I try, I can’t soothe her. She just keeps on saying it again and again and again. Make it stop. She has to stop.

    JUST STOOOOOOOOOOPPPPPPPPPPPP IIIIIIIIIITTTTTTTTTTTT!

    The scream came out of the blue, shocking me as much as it shocked everyone else. I couldn’t help myself though. Her perseveration was never-ending. “No school on Monday!” “No school on Monday!” “No. School. On. Monday!” And then the hiccupping crying came. Followed by hugs and “I’m sorry, Mommy,” and “I don’t like sighing.” And then came the guilt. The guilt of having screamed at Debbie for something she could not help because many times she has trouble getting ou

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  2. The Unspeakable Truths

    The Unspeakable Truths

    As a parent, I worry about my kids. My worries for Debbie outweigh my worries for Joey. I know that Joey will find his place in high school, college, and ultimately in life. But Debbie? She’s different.

    A year ago Vince and I made the difficult but correct decision to change Debbie’s educational track. Instead of graduating with a high school diploma, she will receive a certificate of participation. This decision has untied our hands from creating IEP goals that were unattainable and has allowed us instead to focus on giving Debbie a more appropriate education that will prepare her for life outside of the comforting walls of school. Yet, I still worry!

    Here is what keeps me up at night. I worry about what her future will look like. Where will she live? Will she have friends to support her j

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